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  1. An Iron Will Makes An IRONMAN

    A little bit about me: I am an 18-year-old high-school senior from St. Paul, Minnesota. I have Stargardt Disease and I’m significantly visually impaired. A couple of years ago I started a non-profit called Louie’s Vision that works to help kids with visual impairments find adventure. About a year ago, I approached my parents and told them I wanted to do the Ironman, a one-day race that consists of a 2.4-mile swim, a 112-mile bike ride, and a full 26.2-mile marathon. I was just 17 years old, had no experience…

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  2. Roll Forever

    My name is Dan Mancina, I am from Michigan outside of Detroit. I was born with retinitis pigmentosa (RP), a disease that has deteriorated my vision throughout my life. I have lost about 95 percent of my vision so far. I have been skating since I was about seven years old and am now 31. When I had lost the majority of my functional vision about six years ago, I stopped skating all together, and would not even leave my house without a human guide. I felt very lost and…

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  3. Miracle on Ice: Our Blind Story

    Ever since the era of the Founding Fathers, Washington, D.C. has been the de facto epicenter of political and social causes, playing host to millions of people from all walks of life gathering and marching across the striking backdrop of the National Mall. And earlier this year, another huge crowd gathered in another part of the city to support another important cause. Yes, there was lots of shouting, but this time it wasn’t in frustration or anger — it was shouts of jubilation and pride. After 44 years of struggle,…

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  4. Limited Sight. Purposeful Vision.

    Hi, my name is Erica Powell! I am a fitness professional, marathon runner and national keynote speaker. #MyBlindStory started when I was 6 months old. I was diagnosed with a rare cancer called retinoblastoma-bilateral – cancerous tumors in my retinas. After numerous operations and aggressive treatment, I have now been cancer-free for over 20 years! But as a result of my radiation treatment, I have been experiencing progressive vision loss throughout my entire life. My vision really started to decline as I was hitting my teenage high school years, and…

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  5. When It Comes to Demanding Access, Take the Big Swing

    I am a 14 year old blind skier, horseback rider, cross-country runner, Challenger Little League baseball player, singer, musician, voiceover artist, radio personality, advocate, student lobsterman and geek supreme from a small fishing village named Beals Island, Maine. Oh, and one more thing you should know, I’m a huge Boston Red Sox fan! I was born totally blind from a rare genetic condition known as Leber’s congenital amaurosis (LCA); because of this, I’ve been thrown lots of curveballs in my life. I’ve been bullied in school to the point of…

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  6. Paralympic Powerhouse: Menna and Jen

    Meet Jen My name is Jen and – unusually enough for #MyBlindStory – I’m not blind. I’m sighted (albeit short-sighted) and I’m a serving Officer in the Royal Engineers. I was released from traditional military duties for two years after being scouted as a sighted ski guide for para alpine athlete Menna. However, although I’m not blind, visual impairment and blindness has had a huge impact on my world. As a teenager, I sailed competitively – and once continued in a race even after my glasses were knocked off part-way…

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  7. Strong, Comfortable, Confident – and Ready to Do It Again

    My name is Begoña Manterola and I’m from San Sebastian in the Basque Country of North Spain. I used to work as a hairdresser. When I was 35, doctors told me I had Retinitis Pigmentosa – but it wasn’t until I was 50 that I had to stop working because I was becoming completely blind. Since then, I have focused my life on reinforcing my personal growth. I do theatre, yoga, Pilates and hiking. Recently, I decided to tackle a new adventure – snowshoeing.   On this trip, we snowshoed…

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  8. Trail Blazing the World of Blind Skimboarding

    My name is Kai Owens, and I have an aggressive form of Retinitis Pigmentosa (RP). RP is a form of vision loss that causes night blindness, blind spots known as scotomas, and loss of central acuity and peripheral vision. After being diagnosed in the third grade, I began learning braille, typing, and screen reading computer software – and I decided that no matter what happened, I wasn’t going to let it stop me from doing what I wanted to do. Ever since I was a young kid I have been…

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  9. The Summit Was the Way to Believe in Me

    My name is Julia and my roots are in Zumarraga, a small town close to San Sebastian in the Basque Country, north of Spain. I’m 51 years old and a member of the Spanish National Association of Blind People (ONCE). Since I was 8, I have had progressive myopia magna – this means I only have frontal vision. I don’t have reflections and I have a very short visual field. I inherited this from my mother. Each year since then, I have been losing vision, some years more than others….

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  10. BlindNewWorld’s 2017 Holiday Gift Guide

    The holiday season is here – and BlindNewWorld wants to help you figure out the coolest and most accessible gifts for your blind and visually impaired friends and family. From apparel to toys to tech, we’ve compiled eight of our favorite gifts for everyone on your list!         Two Blind Brothers Apparel This clothing company – created by Bradford and Bryan Manning, brothers who were both diagnosed with a retinal disease – pays special attention to the details in each of their garments. Their original collection is uniquely identified with a small metal…

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