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  1. Insensitive: My Humorous and Insightful Journey with Sight Loss

    For the past 12 years I have experienced sight loss through macular degeneration. When the pandemic hit last year, I found myself with time on my hands and decided to journal my journey with this life challenge in the form of a podcast called Insensitive. So I have been busying myself with the latest episode. Ahh ha, now I’ve got your attention haven’t I? A podcast! When I was in my early 40s, I started having difficulty with my sight. I have had high myopia (severe near-sightedness that, if left…

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  2. help2type: Tech to Make Smartphones More Accessible

    I’m almost blind, with eyesight of 1%. When I try writing on my smartphone using the common touchscreen, it takes forever. I’m sure you know this feeling! Also, I’m always short on time.  For example, when I get up in the morning and would like to answer some important messages or emails first thing, it could lead to me missing my train or subway to work. Naturally I’m aware of the dictation function on my smartphone and the possibility of using the braille input, but I don’t think anybody feels…

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  3. Action Is the Antidote: Reviving Hope in Hard Times

    My word for 2021 was heal. 2020’s was connect. Instead of resolutions, every New Year’s Day I choose a verb to live by for the year. After an isolating pandemic and inherited retinal disease (IRD) diagnosis, both words seem wildly ironic. Last month – weeks after losing my dad unexpectedly – I was diagnosed with a rare inherited retinal disease called Stargardt’s. Affecting roughly one in 10,000 people, Stargardt’s causes progressive vision loss and eventually blindness. This disease, like many others, is the result of a genetic mutation. There was…

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  4. A Mom, Memes and an Innovative Way to Raise Money for Assistive Tech

    Braille literacy is so important to visually impaired kids and yet it can be prohibitively expensive to get books in braille. This is a real problem for my two bookworms Hannah (10) and Daniel (7). They were born with Leber’s congenital amaurosis and therefore blind from birth. Not having the same access to books as other children is a real frustration for Hannah especially. She now has grand plans to open a Braille bookstore in the nearby mall so that kids and people like her can get access to Braille…

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  5. Breaking Down Barriers to Become a Blind Scientist

    I have always been so curious about how the world works. I remember I had a keen mind for deduction even when I was a young kid, listening to audiobooks of Sherlock Holmes. The detective said he could tell the height of a person by listening to his or her footsteps. I became more inspired and more interested in science by watching The Magic School Bus and Bill Nye the Science Guy and then by the work of Marie Curie and my mentors throughout my journeys. I loved all I…

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  6. #MyBlindStory 2020: Reflecting on this year in the #BlindNewWorld

    What a year, huh? The good news is that, even with everything that’s happening out there in the real world, we have a strong, supportive community to help us keep it together and keep going here in the #BlindNewWorld. As always, we wanted to take an opportunity to reflect on and highlight all of the incredible stories that have been shared with us this year. 2020 brought us personal insight from artists, musicians, athletes, innovators, actors, scientists, content creators, professionals, bright young adults, chefs, rock-star parents – as well as…

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  7. A Bad Blind Moms Holiday Gift Guide

    Happy holidays, season’s greetings and all the other fa-la-la we hear this time of year. It’s been an interesting year. Between kiddos at home 24/7, working from home, a worldwide pandemic, and – oh, yeah, did we mention kiddos at home 24/7? – some of us may be a bit Grinchy. The Bad Blind Moms have your back. We are bringing you a gift guide to send to relatives, friends and, of course, significant others. With the help from the virtual mom squad, here’s a finely curated gift guide we…

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  8. Aniridia, Acceptance and Building the Live Accessible Community

    As a young, shy girl with a visual impairment, I felt isolated and alone in crowded school hallways. I questioned my worth and was surrounded by self-doubt. There are so many stories of blind people not only succeeding at life, but thriving – yet I felt ostracized, incapable, unaccepted and lost. I grew up with aniridia syndrome alongside my sister, father and grandmother – all of whom also had this hereditary condition. My brother was totally deaf, though fully sighted. My mom was the only one without a disability. I…

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  9. The Woman Who “Broke the Internet” Demonstrating that #BlindPeopleUsePhones

    While sitting with a good friend one day enjoying her company, she asked me about my phone and to how much I was able to use it. She wondered if she were to send me a web link to something, would my phone read it to me. At the time of our talk, I just responded with a simple explanation that my phone reads any text on the screen, and that I can navigate all of my phone’s apps, settings and features. It was a rather short conversation and we…

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  10. 10 Things You Can Do Today to Support Blind and Visually Impaired Colleagues Working Remotely During COVID-19

    During a recent Zoom meeting with our team, a colleague joked that her biggest concern in the current crisis was that she was having a hard time getting wine delivered. While we all laughed at her comical cry for help, the underlying message was a wake up call for me. That colleague, like many of our colleagues here at Perkins, is blind. If anyone should have been clued into what she, and others in our community, may be needing help with during this crisis, it should have been me. Yet…

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