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  1. Look Forward and Keep Your Eyes on the Prize

    I’m Daniel. I live in the UK and was diagnosed with retinitis pigmentosa at the age of 8. A few years ago, I was featured on the BBC’s Saints and Scroungers talking about my experiences and the traumatic bullying I faced at school. Whilst at mainstream secondary school, when asked if I was blind I would reply, “Not me – I think you’ve got the wrong person” as I didn’t want to admit my eye condition to myself, let alone anyone else. I got angry with teaching assistants who would follow me…

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  2. Coming to a Crossroads and Finding CrossFit

    My story of vision loss began before I can remember. My parents received my diagnosis of retinitis pigmentosa when I was five years old and they were told that I would most likely be totally blind by the age of 18. Without hesitation they started preparing me for life. I learned cane travel, took mobility and braille lessons and – because they knew that I would never be able to play most sports – I was signed up for dance lessons. Dance quickly became everything to me, and would shape…

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  3. Fore! Moving Ahead, Thanks to Golf

    My name is Chad NeSmith, and I am a professional golfer. I also happen to be completely blind. My hometown is Brentwood, Tennessee, where I practice with my golf teacher and friend, Andy Church. I didn’t always play golf, though. When I was younger, I played football and basketball, thinking one day I would be an NFL star. Then I started to lose my vision and completely lost my sight to retinitis pigmentosa at the age of 35. My wife was the person who insisted that I find a hobby…

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  4. Welcome to My Blurred World

    I’m Elin, a 20-year-old blogger and student from the UK. Some of my passions include helping others, writing, beauty, fashion and music, just to name a few. I’d consider myself to be your average 20-year-old since I like to do a lot of the things that others my age do, I just happen to be blind. I was diagnosed with a degenerative condition called Retinitis Pigmentosa when I was six years old – three years after my parents noticed that I couldn’t see certain things, especially in the dark. I…

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  5. The Top 5 Benefits of Learning to Read Braille

    Imagine being in the dark on a stormy night. Everything is out and there’s nothing else to do but sit in the dark. All of a sudden, you pick up a book to read. However you know that you can’t see the book because it’s dark. But it’s different because this book has a special quality. You open the book and realize that there are “dotz” in it! These “dotz” are known as braille! You’re happy because you don’t have to use your eyes to read, and you won’t be…

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  6. A Look Back at 2018: These Are the Stories of the #BlindNewWorld

    2018 has been another incredible year in the BlindNewWorld. We love hearing – and sharing – your stories of adventure, triumph, love, family, learning and so much more. These stories are what keep us going – and what keep our community strong. And we don’t want you to miss a single one of them. So to close out the year, we’re bringing together the full collection of 2018 #MyBlindStory posts. Get to know each and every one of the people who have shared their stories with us this year. And…

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  7. Roll Forever

    My name is Dan Mancina, I am from Michigan outside of Detroit. I was born with retinitis pigmentosa (RP), a disease that has deteriorated my vision throughout my life. I have lost about 95 percent of my vision so far. I have been skating since I was about seven years old and am now 31. When I had lost the majority of my functional vision about six years ago, I stopped skating all together, and would not even leave my house without a human guide. I felt very lost and…

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  8. My RP Secret

    My name is Dave Steele. I’m a singer and poet from the UK who, since being diagnosed with retinitis pigmentosa in 2013, has dedicated my life to raising awareness for visually impaired people worldwide through poetry and music. Following is a poem I wrote for my daughter, Ellie. The Secret It took me years to come to terms with how my eyes declined Through stages of acceptance of slowly going blind But nothing I could ever do would allow me to prepare To tell my little girl the thing I…

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  9. Strong, Comfortable, Confident – and Ready to Do It Again

    My name is Begoña Manterola and I’m from San Sebastian in the Basque Country of North Spain. I used to work as a hairdresser. When I was 35, doctors told me I had Retinitis Pigmentosa – but it wasn’t until I was 50 that I had to stop working because I was becoming completely blind. Since then, I have focused my life on reinforcing my personal growth. I do theatre, yoga, Pilates and hiking. Recently, I decided to tackle a new adventure – snowshoeing.   On this trip, we snowshoed…

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  10. Trail Blazing the World of Blind Skimboarding

    My name is Kai Owens, and I have an aggressive form of Retinitis Pigmentosa (RP). RP is a form of vision loss that causes night blindness, blind spots known as scotomas, and loss of central acuity and peripheral vision. After being diagnosed in the third grade, I began learning braille, typing, and screen reading computer software – and I decided that no matter what happened, I wasn’t going to let it stop me from doing what I wanted to do. Ever since I was a young kid I have been…

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