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  1. Evolution and Inclusive Language: Creating a New Term for Visual Disabilities

    The terms we use carry with them significance. They can denote power and strength, or they can also denote weakness and other negative biases.  As a society, we have become more aware of the power of language when describing people who may identify in ways that are marginalized. Even better, we have been adopting language created by those people themselves.  I am a DeafBlind person. This is just one aspect of who I am – I’m also a husband and soon-to-be dad, a graduate student, an instructor at Perkins School…

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  2. There Aren’t Any Shortcuts to Make Beautiful Things

    My name is Ana Cristina and I’m a deafblind jewelry designer. I am 40 years old and I haven’t ever felt as blessed and complete as I do now. But it took me some time to get here, and this is my story. The long road to diagnosis It was 2 p.m., our calculus professor wrote an equation on the board for us to compute mentally: no papers, no calculators. Just our eager young competitive brains crunching out numbers, because whoever won this round got extra credit plus pizza.  I…

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  3. #MyBlindStory 2020: Reflecting on this year in the #BlindNewWorld

    What a year, huh? The good news is that, even with everything that’s happening out there in the real world, we have a strong, supportive community to help us keep it together and keep going here in the #BlindNewWorld. As always, we wanted to take an opportunity to reflect on and highlight all of the incredible stories that have been shared with us this year. 2020 brought us personal insight from artists, musicians, athletes, innovators, actors, scientists, content creators, professionals, bright young adults, chefs, rock-star parents – as well as…

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  4. 10 Things You Can Do Today to Support Blind and Visually Impaired Colleagues Working Remotely During COVID-19

    During a recent Zoom meeting with our team, a colleague joked that her biggest concern in the current crisis was that she was having a hard time getting wine delivered. While we all laughed at her comical cry for help, the underlying message was a wake up call for me. That colleague, like many of our colleagues here at Perkins, is blind. If anyone should have been clued into what she, and others in our community, may be needing help with during this crisis, it should have been me. Yet…

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  5. Breaking Barriers and Feeling Through: Meet the First Deafblind Actor to Star in a Film’s Lead Role

    I was born deaf, but with 20/20 vision. I’ve always wanted to be an actor. My favorite actors were John Wayne, Henry Fonda, Burt Lancaster, Jon Voight, Robert Mitchum, Doug McClure, and Kirk Douglas. When I was a kid, I played sports like football, basketball, and track. When I was at the Arizona State School for the Deaf and Blind, I was a good player, but I kept thinking about wanting to act! I went to a community college for a while in Arizona. I made the honor roll one…

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  6. #MyBlindStory 2019: An Amazing Year in Review

    Your stories are the foundation of the #BlindNewWorld community – and there is no limit to who can join us here. Our 2019 contributors came to us from all over the U.S. – and around the world. They’re stars from Hollywood and hip-hop. Champion athletes. Savvy young adults. Internationally recognized gamers. Eloquent bloggers. Published poets. Accessibility-minded inventors. Talented craftspeople. Passionate artists. Innovative businesspeople. Determined doctors! Staunch advocates and committed allies. And above all, they are change-makers. These are people who are willing to share their voices and their stories to…

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  7. Rucking – While Deafblind

    My name is Brian Switzer. I am deafblind as a result of a condition called Usher Syndrome. As a child, I attended a couple schools for the deaf before switching into a public school. I progressively went blind. I was diagnosed with sight loss at age 4, became legally blind at age 16, and now only possess some light sensitivity. I hold a Master’s degree in Public Policy. I am a co-author on a book on living with deafblindness called, “Walk In My Shoes: An Anthology On Usher Syndrome.” And…

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  8. Setting my Sights on Medicine – Insight from a Deafblind Medic

    It has always been the case where, if someone told me I couldn’t do something, I would go out of my way to prove that I, in fact, could. Despite going to a residential school geared toward supporting students with visual impairments, nearly all the teachers discouraged me from following my dreams of studying medicine at university, saying that it simply wasn’t possible for visually impaired people like myself to do.  So when I dismissed this advice, and finally got accepted into medical school following my interview, I was elated….

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  9. A Look Back at 2018: These Are the Stories of the #BlindNewWorld

    2018 has been another incredible year in the BlindNewWorld. We love hearing – and sharing – your stories of adventure, triumph, love, family, learning and so much more. These stories are what keep us going – and what keep our community strong. And we don’t want you to miss a single one of them. So to close out the year, we’re bringing together the full collection of 2018 #MyBlindStory posts. Get to know each and every one of the people who have shared their stories with us this year. And…

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  10. Blindness Isn’t Me

    Hello I’m Casandra, better known as CaspHer. I was born in Miami and grew up in Massachusetts. I’ve lived with blindness and deafness my entire life. Most people would assume that I couldn’t do much – but once they’ve spent twenty minutes with me, they realize that I am more than capable. I am an assistive technology trainer for the deafblind and seniors in Massachusetts. I enjoy teaching technology and seeing people succeed. My background was not in blindness at all. In fact, it was in fine arts. I realized…

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