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Tag Archives: Community

  1. My RP Secret

    August 15, 2018 - By Dave Steele

    My name is Dave Steele. I’m a singer and poet from the UK who, since being diagnosed with retinitis pigmentosa in 2013, has dedicated my life to raising awareness for visually impaired people worldwide through poetry and music. Following is a poem I wrote for my daughter, Ellie. The Secret It took me years to come to terms with how my eyes declined Through stages of acceptance of slowly going blind But nothing I could ever do would allow me to prepare To tell my little girl the thing I…

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  2. When It Comes to Demanding Access, Take the Big Swing

    July 18, 2018 - By Noah Carver

    I am a 14 year old blind skier, horseback rider, cross-country runner, Challenger Little League baseball player, singer, musician, voiceover artist, radio personality, advocate, student lobsterman and geek supreme from a small fishing village named Beals Island, Maine. Oh, and one more thing you should know, I’m a huge Boston Red Sox fan! I was born totally blind from a rare genetic condition known as Leber’s congenital amaurosis (LCA); because of this, I’ve been thrown lots of curveballs in my life. I’ve been bullied in school to the point of…

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  3. Not Just A Smart Cane – a Movement to Raise Role Models

    July 5, 2018 - By Batuhan Demir

    Young Guru Academy (YGA) is a non-profit organization founded in Turkey in 2000 that cultivates selfless leaders to realize the dream of a brighter future for the younger generations. One of the program’s graduates, Kürşat Ceylan, has emerged as an award-winning social entrepreneur who has spoken at the United Nations – and who is still leading the technologies that YGA develops, specifically those for visually impaired people. “YGA works on breakthrough social innovations to inspire people and give hope. Our latest technology is WeWALK, a revolutionary smart cane for the…

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  4. Our Nystagmus Story

    June 20, 2018 - By Sue Ricketts

    When my baby daughter was 6 weeks old, somebody wearing a white coat told me she was blind. She wasn’t blind. I knew that. But I also knew there was something wrong with her eyes. It turned out to be nystagmus. I’d never heard of it before. From that day on, our nystagmus journey began. Nystagmus is characterized by uncontrolled eye movements, which make focusing very difficult. It is a lifelong condition and cannot be corrected with glasses or contact lenses. Most people with this condition have impaired depth and…

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  5. Renegades

    May 23, 2018 - By Louie McGee

    “Long live the pioneers Rebels and mutineers Go forth and have no fear… It’s our time to make a move It’s our time to make amends It’s our time to break the rules Let’s begin” –X Ambassadors, Renegades   Earlier this month, I was at the X Ambassadors concert here in Minneapolis. I have been a fan since I first heard them. I went with my family, friends and a few people from the Louie’s Vision Board of Directors. The show was above and beyond what I could have expected….

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  6. Strong, Comfortable, Confident – and Ready to Do It Again

    May 9, 2018 - By Begoña Manterola

    My name is Begoña Manterola and I’m from San Sebastian in the Basque Country of North Spain. I used to work as a hairdresser. When I was 35, doctors told me I had Retinitis Pigmentosa – but it wasn’t until I was 50 that I had to stop working because I was becoming completely blind. Since then, I have focused my life on reinforcing my personal growth. I do theatre, yoga, Pilates and hiking. Recently, I decided to tackle a new adventure – snowshoeing.   On this trip, we snowshoed…

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  7. Why I Learned to SEE: Set Extraordinary Expectations

    April 25, 2018 - By Kristin Smedley

    My three children, two sons and a daughter, are typical teenage kiddos. They go to public school. They play sports. They have friends. They often stay up too late, keep their rooms quite messy, and talk back to me every now and again. Yep, pretty typical. But my kiddos also each have a certain, not-so-typical aspect that makes them, well, them. Many people describe my children as extraordinary. But I don’t. High achievers? Yes. Resilient? You bet. But extraordinary? No. However, it is my expectations for them and their expectations…

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  8. Trail Blazing the World of Blind Skimboarding

    April 11, 2018 - By Kai Owens

    My name is Kai Owens, and I have an aggressive form of Retinitis Pigmentosa (RP). RP is a form of vision loss that causes night blindness, blind spots known as scotomas, and loss of central acuity and peripheral vision. After being diagnosed in the third grade, I began learning braille, typing, and screen reading computer software – and I decided that no matter what happened, I wasn’t going to let it stop me from doing what I wanted to do. Ever since I was a young kid I have been…

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  9. Breakthrough Tech for the Blind and Visually Impaired

    March 28, 2018 - By Hannah Ziring

    According to the National Federation of the Blind, there are an estimated 7 million Americans with a visual disability. And according to the World Health Organization, there are 285 million visually impaired people worldwide. That means there are many people out there who are searching for solutions to help them live more independently. We’re lucky to live in a world where the advancements in technology are outstanding. There is a lot of work and research being done to find ways to improve life for partially sighted and blind people. Reading and recognition devices are…

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  10. Learning Through Love

    March 14, 2018 - By Silvia Cerolini

    Vicky is our four-year-old girl and she is losing her sight due to a rare genetic condition called Leber Congenital Amaurosis. And I would like to take a moment to thank her. I have redrafted this post many times, writing and rewriting all the little things I thank Vicky for. No words seem to capture all emotions and feelings. The truth is simple: I want to thank Vicky for what she’s teaching us. When you hug me strongly and tell me “Mummy, I love you sooooooo much,” you are teaching…

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