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#MyBlindStory

  1. Our Nystagmus Story

    June 20, 2018 - By Sue Ricketts

    When my baby daughter was 6 weeks old, somebody wearing a white coat told me she was blind. She wasn’t blind. I knew that. But I also knew there was something wrong with her eyes. It turned out to be nystagmus. I’d never heard of it before. From that day on, our nystagmus journey began. Nystagmus is characterized by uncontrolled eye movements, which make focusing very difficult. It is a lifelong condition and cannot be corrected with glasses or contact lenses. Most people with this condition have impaired depth and…

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  2. Paralympic Powerhouse: Menna and Jen

    June 6, 2018 - By Menna Fitzpatrick & Jennifer Kehoe

    Meet Jen My name is Jen and – unusually enough for #MyBlindStory – I’m not blind. I’m sighted (albeit short-sighted) and I’m a serving Officer in the Royal Engineers. I was released from traditional military duties for two years after being scouted as a sighted ski guide for para alpine athlete Menna. However, although I’m not blind, visual impairment and blindness has had a huge impact on my world. As a teenager, I sailed competitively – and once continued in a race even after my glasses were knocked off part-way…

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  3. Renegades

    May 23, 2018 - By Louie McGee

    “Long live the pioneers Rebels and mutineers Go forth and have no fear… It’s our time to make a move It’s our time to make amends It’s our time to break the rules Let’s begin” –X Ambassadors, Renegades   Earlier this month, I was at the X Ambassadors concert here in Minneapolis. I have been a fan since I first heard them. I went with my family, friends and a few people from the Louie’s Vision Board of Directors. The show was above and beyond what I could have expected….

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  4. Strong, Comfortable, Confident – and Ready to Do It Again

    May 9, 2018 - By Begoña Manterola

    My name is Begoña Manterola and I’m from San Sebastian in the Basque Country of North Spain. I used to work as a hairdresser. When I was 35, doctors told me I had Retinitis Pigmentosa – but it wasn’t until I was 50 that I had to stop working because I was becoming completely blind. Since then, I have focused my life on reinforcing my personal growth. I do theatre, yoga, Pilates and hiking. Recently, I decided to tackle a new adventure – snowshoeing.   On this trip, we snowshoed…

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  5. Why I Learned to SEE: Set Extraordinary Expectations

    April 25, 2018 - By Kristin Smedley

    My three children, two sons and a daughter, are typical teenage kiddos. They go to public school. They play sports. They have friends. They often stay up too late, keep their rooms quite messy, and talk back to me every now and again. Yep, pretty typical. But my kiddos also each have a certain, not-so-typical aspect that makes them, well, them. Many people describe my children as extraordinary. But I don’t. High achievers? Yes. Resilient? You bet. But extraordinary? No. However, it is my expectations for them and their expectations…

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  6. Trail Blazing the World of Blind Skimboarding

    April 11, 2018 - By Kai Owens

    My name is Kai Owens, and I have an aggressive form of Retinitis Pigmentosa (RP). RP is a form of vision loss that causes night blindness, blind spots known as scotomas, and loss of central acuity and peripheral vision. After being diagnosed in the third grade, I began learning braille, typing, and screen reading computer software – and I decided that no matter what happened, I wasn’t going to let it stop me from doing what I wanted to do. Ever since I was a young kid I have been…

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  7. Breakthrough Tech for the Blind and Visually Impaired

    March 28, 2018 - By Hannah Ziring

    According to the National Federation of the Blind, there are an estimated 7 million Americans with a visual disability. And according to the World Health Organization, there are 285 million visually impaired people worldwide. That means there are many people out there who are searching for solutions to help them live more independently. We’re lucky to live in a world where the advancements in technology are outstanding. There is a lot of work and research being done to find ways to improve life for partially sighted and blind people. Reading and recognition devices are…

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  8. Learning Through Love

    March 14, 2018 - By Silvia Cerolini

    Vicky is our four-year-old girl and she is losing her sight due to a rare genetic condition called Leber Congenital Amaurosis. And I would like to take a moment to thank her. I have redrafted this post many times, writing and rewriting all the little things I thank Vicky for. No words seem to capture all emotions and feelings. The truth is simple: I want to thank Vicky for what she’s teaching us. When you hug me strongly and tell me “Mummy, I love you sooooooo much,” you are teaching…

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  9. Post a #BlindSelfie to Win Cool Blind Tech!

    February 28, 2018

    More than half of Americans say they have not seen a blind person. At BlindNewWorld, we think it’s time for all of America to see the 7 million blind and visually impaired people in the U.S. living their lives to the fullest. The #BlindSelfie Sweepstakes asks our blind community and friends to post a selfie on Instagram or Twitter with the hashtags #BlindSelfie and #BlindNewWorld. Don’t forget to include image descriptions with your post! It’s time for Americans to change the way they see – and what’s more American than a…

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  10. Living My Normal, Blind Life to the Fullest

    February 28, 2018 - By Derek Daniel

    My story is probably pretty boring to some. I am a husband, father and content creator who just happens to be visually impaired. I spend my days at home, making sure my kids are taken care of, making podcasts and videos, preparing dinner and so forth. It’s not the most exciting life, but it is my life. And, I think it displays what being a VIP is all about. It’s more than trying to do “amazing” things as a blind person. It is about getting up every day and living…

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